I do not remember much when I was a baby but different family members have told me that the doctors told my mom and dad I would never live or if I did I would not live a full life but I have totally proved them wrong, the doctors said I would never have full control over anything like sitting or even trying to walk. I also proved them wrong to an extent with that one even though I use a wheelchair now. I did walk some when I was younger but it took me too long to get where I was going, so they said it would be better with a wheelchair. I have an electric chair at home but I only use it for trips and long distancesm I do not want to use lose my upper body strenth so I had rather use a manuel chair, In elementary school I received physical therapy but they cut that out saying if it did not pertain to my situation I was not able to receive it in high school. I took drivers education just like everybody else did. They had special cars equipped that we could use with hand controls and brakes. I went to a driving school in Orlando FLORIDA and they taught me how to drive but I never felt comfortable enough to drive by myself. That doesn’t mean I did not drive but I would only with my mom in the car and only to certain places. When I worked the Parker branch of Tyndall FEDERAL CREDIT UNION I would drive there and home with my mom. Then they moved me over to the Lynn HAVEN branch behind Haney and I drove over there but it was farther than I felt comfortable driving. The day I was born they did an operation on my back to close it up since it was open when I was born, The doctors told my mom and dad he was going in there and try to repair the damage and put the sac back where it belonged. He told them right then and there he did not know how it would turn out they would just have to wait and see, He also told them that most patients with this condition never do anything, so I proved them all wrong. I am actually a miracle because they said I would never live and now I am 41 years old with a full time job.
My childhood was a typical childhood except for that I was in the wheelchair. My mom and dad both worked so sometime I would have to get up and get ready for the bus before my mom left for work, but we made it work, I have a brother and sister we fought just like every brother and sister would, they did not give me any special treatment just because of my disability I would I would give it right back to them If they messed with me. Getting back to my childhood I had numerous surges not just to for my sunt but for my dislocated hip that was out of socket so many times I can’t keep up the doctors would put it in and they would either not put it in far enough or they rotated it to far in so the last time they did it they rotated it to far in so I finely decided to just leave it and not bother it anymore, one surgery I had I don’t remember very well but told about when I was little my gasses got mixed up and they had to tell my mom and dad about it they liked not to have saved me on that one, when I was in school I was the poster child for the March of dimes I’m not sure the exact years I think it was when I was about maybe between the ages of 6-12 maybe a little sooner or a little layering just remember one year I had to wear a wig on tv because I had surgery to replace my shunt which I said earlier was always messing up when I was younger. I had several opportunities to meet different stars off of several operas, I had a chance to meet Isaac off of the love boat. Two of the people I had a chance to meet were Doug and Julie off of the days of our lives. I meet numerous people thru the March of dimes but that was years ago and I can’t recall who all I had a chance to meet. Everybody may think this is crazy when you read this but I can tell when a storm/ hurricane is coming my shunt will mess up I usually end up in the hospital because of it, fortunately as I get older my shunt has not bothered me as muc, I just remember one hurricane it was hurricane Elena I ended up in the hospital here at bay medical and the doctors to do surgery on me to replace it but the next morning I woke up and was fine so my mom told them to cancel the surgery that she was taking me home
The elementary school I school I went to was just one classroom for the disabled so it was set up fairly nice , in the summer time the school would take take us down to the billy joe Rish state park where they had/have a very nice set up for the disabled students there cabins are all 100 percent accessible for the disabled they even have an accessible pool that people with disabilities can use, my high school was fully accessible rode the bus everyday to and from school getting to my childhood like I said earlier I did not let things stop me I tried to do as much as possible for myself, I went to all the school activities that I could go to my junior year me and my cousin went to the junior prom by ourselves, my senior year I went to prom with a guy from the church I was going to at the time both proms I had a blast at I do not drive so I have someone take me and pick me up wherever i go, even after I finished school I did not stop going places like most people would think I woul, I went to out to different places I did not let the wheelchair stop me I would hang out at the skating rink on a Friday and Saturday night until I was old enough to start going to the clubs then a friend of mine and me would go see the group clutch until they quit playing I would also go to another bar that a friend of mine played in and listen to his band. When my friend was not with me my mom would take me and pick me up when I called her.
I work a full time job at Tyndall Federal Credit Union. I have been been with Tyndall for 20 years. Getting back to to not letting my disability stop me I have been to several nascar races in Talladega Alabama I also have been to chatnooga Tn to the aquarium plus numerous other places. My childhood was pretty much like every other even though I had a disability I had a go cart that was equipped with hand controls so I could drive it myself. Me and my family went places just like everybody else me and my dad would go hunting every hunting season he would put my chair that I had at the time in the front seat of our jeep and we would take off to the woods for hours on en. We would also go fishing and just take a lawn chair and set it up at the banks or even on the boat we had. In school growing up at first I stayed in one classroom all day but as I got older like in middle school I was mainstreamed out to regular classes, I will not forget the first time I started middle school they had nothing accessible for people with disabilities, not even one restroom, so my mom told them I would not be back until it was accessible and they told the parents that they agreed to take us in the middle school that they did not have to take us so I was out of school for 2 weeks until they made everything accessible for us.
Hello my name Charlene Childers I Have a Disability and it is called Spina Bifda. I am 41 Years old and I’m dealing with my Spina Bifda everyday. I use a Manuel wheelchair to get where I need to go. I do not let my disability stop me from going places,I aso have a shunt
That pumps fluid off of the brain and into my stomach, I have had numerous surgeries to replace my shunt, Also I have multiple growths all over my body they are extra bones that grows all over my body especially all through my left knee area. The doctors can not remove those in my knee because the ligaments are growing over the. Like I said earlier I do not let my disability stop me I have been on numerous trips my latest was going to Canada to see niagra falls, A lady I go to church with goes with me on my trips since I do not drive and also I need help with other stuff. Most kids with Spina Bifda does not have control of there kidneys or bladder I have control of both my kidneys and bladder that does not mean I do not have problems ever so often